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ACMCRN's Rare Disease Day Presentation
February 28th 2022

Grab some popcorn, sit back and relax and watch our video presentation for Rare Disease Day. You will learn more about living with a rare disease and what that means to you and your family. Listen to other patients who are going through the same thing that you are. Although the patient testimony is powerful and can evoke strong feelings, hopefully by the end of the video, you will feel empowered and learn some important tools for coping with your new life with a rare disease, including how to discuss your situation with your medical professionals.