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Welcome to our comprehensive file section, a treasure trove of invaluable resources designed to empower and educate our community. Dive into the depths of knowledge with our Arachnoiditis Literature Review , where you'll find insights that unravel the complexities of this condition. Explore the Brain & Spinal Cord Immune System section, delving into the intricate mechanisms that safeguard our grey matter. Gain clarity on Cerebral Spinal Fluid Leaks & Blockage with resources and videos that illuminate this intricate realm. Our Disabled Resources segment is a beacon of support, offering guidance and insights to navigate challenges. Discover the world of Implanted Devices , unraveling the do's, don'ts, and secrets they hold. Immerse yourself in Misc Files & Articles , an array of perspectives and studies that enrich your understanding. Lastly, embark on a journey of Practical Pain Management , where clinical updates and emotional insights harmonize. Your quest for knowledge and empowerment begins here, within our meticulously curated file section. Arachnoiditis Articles and Literature Reviews ​ The leptomeninges as a critical organ for normal CNS development and function First patient and public involved systematic literature review of arachnoiditis (chronic meningitis) Spinal Adhesive Arachnoiditis: A Literature Review - PMC (nih.gov) Corticosteroid Therapy in Acute and Subacute Arachnoiditis – A Case Series Perspective: Lumbar adhesive arachnoiditis (AA)/Chronic AA (CAA) are clinical diagnoses that do notrequire radiographic confirmation Adhesive arachnoiditis following lumbar epidural steroid injections: a report of two cases and review of the literature Burton Report A Novel Technique Using Magnetic Resonance Imaging in the Supine and Prone Positions for Diagnosing Lumbar Adhesive Editorial for “MRI Findings of Arachnoiditis, Revisited. Is Classification Needed?” Arachnoiditis: APreliminary Study Lumbar arachnoiditis_ Does imaging associate with clinical features-ScienceDirect PROTOCOLES D'URGENCE ET DE DÉMARRAGE POUR L'ARACHNOIDITE ADHÉSIVE LOMBO-SACREE (AA) A Novel Technique Using Magnetic Resonance Imaging in the Supine and Prone Positions for Diagnosing Lumbar Adhesive Arachnoiditis: A Preliminary Study Medical treatment for epidural fibrosis post-surgery with association of pentoxifylline-tocopherol-clodronate (PENTOCLO) Obstetric Epidurals and Chronic Adhesive Arachnoiditis ​ Brain and Spinal Cord Great Article on how the brain and spinal cord has its own immune system. Guardians of the brain: how a special immune system protects our grey matter (nature.com) The Effect of L-Arginine on Dural Healing ​ Cerebral Spinal Fluid Leaks and Blockage Resources and videos Spontaneous Low Pressure, Low CSF Volume Headache : Spontaneous CSF Leaks Spontaneous Intracranial Hypotension : 10 Myths and Misconceptions Bulletin #19 : Spinal Fluid Seepage Bulletin #76 : Why Adhesive Arachnoiditis Causes Spinal Fluid Leaks Bulletin #77 : Complications and Treatment of AA Spinal Fluid Leaks Bulletin #47 : Spinal Fluid Flow Exercises for AA Treatment Bulletin #74 : Rocking Chair for CSF flow Bulletin #69 : Acetazolamide for the treatment of high spinal pressure for blurry eyes, headaches, and dizziness Myelography Techniques for the Detection of Spinal CSF Leaks in Spontaneous Intracranial Hypotention ​ CSF Leaks videos from Spinal CSF Leak Canada ​ VIDEO #1- Diagnosis and Treatment of Rebound Intracranial Hypertension (RIH) - A Complication of Epidural Blood/Fibrin Patching and Surgery (Treatment for a Spinal Cerebrospinal Fluid (CSF) Leak/SIH . ​ VIDEO #2-Post Dural Puncture Headache (PDPH) – Diagnostic and Treatment Strategies for Chronic Iatrogenic Spinal CSF Leaks. ​ VIDEO #3- Dr. Farnaz Amoozegar, presented this talk on ”PDPH - Clinical Perspective from the Neurologist's Viewpoint” at our webinar on Chronic Iatrogenic Spinal CSF Leaks, on April 9, 2022. ​ Disability and Other Resources Also see our members only community forum under "Disabled Resources " for more resources Miracle Flights Available grants for people with disabilities Navigating the Job Market with a Rare Disease: A Toolkit for Success How to get palliative care in the US Free Flights for Rare Disease Patients Free Flights for Rare Disease Patients Patient Advocate Foundation (PAF) American Pain and Disability Foundation Patient Advocacy Services; Pain Patient Assistance; Pain Patient Education Understanding Career Opportunitiesmand Employment Benefits Can You Get Disability Benefits for Spinal Arachnoiditis? | DisabilitySecrets EDS-Ehlers Danlos Syndrome and Associated Connective Tissue Disorders Cusack Protocol for Connective Tissue Disorders Cusack Protocol Dosages chart Cusack Protocol Dosages - list FAQ - Debbie Johnson FAQ for Newcomers Biomarkers in Connective disease, including Arachnoidiotis The skin in hypermobile Ehlers-Danlos syndrome – The Ehlers-Danlos Support UK ​ Implanted Devices Pain Pump Do’s Don'ts and Things They Won’t Tell You Misc. Files & Articles ​ ​ The Physiologic Effects of Pain on the Endocrine System - PMC (nih.gov) Toward a Systematic Approach to Opioid Rotation ​ Comprehensive Review of Arachnoiditis Don’t Call it a Miracle - The Movement to Cure Spinal Cord Injury ​ Timing of Early Treatment of Neurological Deficits Post Intervention and Operative Spinal Procedures ​ ​ ​ Practical Pain Management Adhesive Arachnoiditis: A Clinical Update (practicalpainmanagement.com) A first-generation diagnostic and treatment guide for managing this inflammatory, painful condition of the lower spinal canal. Accepting a Chronic Pain Diagnosis: A Trip Through the 5 Emotional Stages Spinal Fluid CSF Disabled Resource Collagen Diseases Implanted Devices Misc Articles Dr. Tennant Dr. Tennant Handbooks and Other Papers Adhesive Arachnoiditis Colored Brochure by Dr. Tennant ​ Dr. Tennant's Bulletins ​ Bulletin 10 Naltrexone (LDN) Bulletin 15 3 Component Treatment to Tackle AA – 2021 Bulletin 19 Spinal Fluid Seepage Bulletin 21 Best Drugs for AA and IPS Featured: Pregnenolone Bulletin 27 Recommended Starting Protocol Bulletin 61 (1 of 2) -MRI diagnosis of Lumbar Adhesive Arachnoiditis (AA) for Primary Care Practitioners Bulletin 62 (2 of 2)-MRI diagnosis of Lumbar Adhesive Arachnoiditis (AA) for Primary Care Practitioners Bulletin 63 Symptom Criteria For a Diagnosis of Adhesive Arachnoiditis (AA) Bulletin 64 Are You Ready for Your Next Flare? Bulletin 65 Ancient History Underpins the Three Component Protocol (see bulletin 15) Bulletin 66 Steps to Take if You're Deteriorating Bulletin 67 What is Lumbar/Sacral Adhesive Arachnoiditis Bulletin 68 Protocol First- Then Try New Treatments Bulletin 69 Acetazolamide for Headaches, Blurred Vision, and Dizziness Bulletin 70 Time Frame and Process to Developing AA Bulletin 72 The “Empty Sac” Sign – What does it mean? Bulletin 73 Diet for AA Bulletin 74 Rocking Chair Therapy Bulletin 76 Why AA Causes CSF Leak Bulletin 77 Complications of CSF Leaks ​ Dr. Tennant Chronicles Chronicle 11 Foods that help heal an inflamed body Chronicle 102 INTRACTABLE PAIN SYNDROME (IPS) IS TREATED WITH A 4-COMPONENT PROTOCOL Chronicle 75 ELECTRO-MEDICAL (EM) THERAPY SERIES Part one of four ELECTRIC CURRENT (EC) THERAPY Chronicle 79 CRITICAL NECESSITY TO MAINTAIN HORMONE BLOOD LEVELS Chronicle 80 THE OLD-FASHIONED ESTROGEN SHOT Chronicles 81 IS KRATOM RIGHT FOR YOU? Chronicle 82 Symptom criteria for diagnosis of AA Chronicle 83 WHY AND WHAT YOU MUST KNOW ABOUT GABA Chronicle 86 Failure to differentiate between addiction, chronic pain, and IPS Chronicle 87 – How neurotransmitter-receptor systems relieve pain – Part 1 Chronicle 88 – Neurotransmitters and receptors – Part 2 Chronicle 89 – How to raise critical neurotransmitters – Part 3 Chronicle 90 – Immediate pain relief with GABA – Part 4 Chronicle 91 – Necessity to regenerate endorphin receptors – Part 5 Chronicle 95 – Are you in palliative or curative care? – Part 1 Chronicle 96 – Fallacies and misconceptions about palliative care – Part 2 Chronicle 97 – Palliative Care- Presenting your case to family and physician – Part 3 Chronicle 98 – IPS depletes cortisol-adrenal storage (reserve) Chronicle 99 – IPS patients have two kinds of pain: neuroinflammatory and neuropathic Chronicle 100 – Why high blood sugar (glucose) worsens pain Chronicle 101 – Metabolic complication of IPS: diabetes pre-diabetes, excess cholesterol Chronicle 102 – IPS is treated with a 4-component protocol ​ Dr. Tennant Bibliographies BIBLIOGRAPHY OF SCIENTIFIC ARTICLES SUPPORTING THE USE OF KETOROLAC FOR PATIENTS WITH AA BIBLIOGRAPHY ON PREVALENCE OF ADHESIVE ARACHNOIDITIS (AA) BIBLIOGRAPHY OF SCIENTIFIC ARTICLES SUPPORTING THE USE OF CORTICOSTEROIDS FOR PATIENTS WITH ADHESIVE ARACHNOIDITIS BIBLIOGRAPHY OF ARTICLES ON BRAIN SCANS IN INTRACTABLE PAIN SYNDROME BIBLIOGRAPHY FOR ADHESIVE ARACHNOIDITIS ​

< Back Stuart Rosenblum Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Sheldon Jordan Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

The holidays are a kaleidoscope of twinkling lights, festive feasts, and joyous gatherings. But for those living with Arachnoiditis, the season's magic can come with a bittersweet sting. Chronic pain, fatigue, and sensory sensitivities can turn even the simplest celebrations into daunting hills to climb. Yet, despair not, Arachnoiditis warriors! With a little planning and a dash of holiday spirit, you can navigate the season's merry maze with grace and resilience. Here are some tips to help: Pace Yourself: Your energy is precious, so guard it like a coveted gift. Prioritize outings and activities that bring you joy and avoid the pressure to "do it all." Delegate, say no without guilt, and embrace cozy nights in with loved ones. Mind the Menu: Holiday feasts are delicious but can be inflammatory for Arachnoiditis patients. Plan your meals with sensitivity in mind, opting for smaller portions, familiar ingredients, and gentle spices. Pack your own snacks and drinks for gatherings to ensure your comfort. Sensory Savvy: Crowds, flashing lights, and loud music can overwhelm. Choose quieter settings, bring noise-canceling headphones, and limit exposure to potential triggers. Remember, your health is the ultimate party favor. Prioritize Comfort: Dress for the occasion, but prioritize comfort above all else. Opt for loose-fitting outfits that won't irritate your skin or constrict your movements. Cozy blankets and supportive cushions can be your holiday heroes. Embrace the Virtual: Technology can be your bridge to holiday cheer. Connect with loved ones through video calls, share virtual gifts, and participate in online festivities. Remember, distance doesn't diminish love, and virtual celebrations can be just as meaningful. Most importantly, be kind to yourself. This season is about joy and connection, not performance. Celebrate your victories, big and small, and remember that rest is a form of self-care. Now, as you weave your way through the holiday whirlwind, remember that your journey is not solitary. The Arachnoiditis & Chronic Meningitis Collaborative Research Network (ACMCRN) stands beside you, fighting for better treatments and a brighter future. This holiday season, consider spreading your wings and supporting ACMCRN's vital work. A donation, no matter how big or small, can fuel research, empower patients, and bring hope to those navigating this challenging condition. Visit https://www.acmcrn.org/donate let your generosity be the light that guides others through the darkness of Arachnoiditis. Together, we can make this holiday season, and every season to come, a celebration of strength, resilience, and the unwavering spirit of the Arachnoiditis community. Remember, even with limitations, your holiday joy can shine brightly. So, put on your metaphorical angel wings, spread kindness, and let the spirit of the season guide you through. Happy holidays, Arachnoiditis warriors!

While Ehlers-Danlos Syndrome (EDS) and Chronic Regional Pain Syndrome are separate conditions from #Arachnoiditis, we know that there seems to be a correlation between all three. Many people with Arachnoiditis also have diagnoses or symptoms of these 2 other diseases. This is an interesting review of EDS and CRPS and #chronicpain that you might find informative. Click below to be taken to the article from PNN.

Have you learned about the different breathing methods for decreasing stress and pain? Researchers sought to determine if breathing techniques are effective in reducing pain, and how they stacked up against mindfulness techniques. Prolonged "sighing ", used intentionally as a treatment technique, appears to be the best. Seem too simple to really help? Our sympathetic system, which responds to stress with increased muscle tension, increased heart rate etc absolutely does affect our pain levels. Slowing the sympathetic system by inducing the parasympathetic system is why rhythmic breathing exercises work. The autonomic system,which is in charge of our daily autonomic system (heart rate, blood pressure, stomach emptying etc), is under the control of the parasympathetic system, until the sympathetic system initiates fight or flight (stress) responses. Reducing stress thus reduces pain. Breathing exercises can be very effective when used everyday. #stress #breathing #painmanagement #tools Breathing exercises for stress https://www.nhs.uk/mental-health/self-help/guides-tools-and-activities/breathing-exercises-for-stress/ Brief structured respiration practices enhance mood and reduce physiological arousal https://www.cell.com/cell-reports-medicine/fulltext/S2666-3791(22)00474-8?_returnURL=https://linkinghub.elsevier.com/retrieve/pii/S2666379122004748%3Fshowall%3Dtrue