Arachnoiditis in Europe: From Patient Initiative to European Breakthrough
Discover how patient advocacy in Europe is working to advance recognition, diagnosis, research, and care for Arachnoiditis.
Time & Location
Sep 19, 2026, 7:00 AM – 8:00 AM PDT
Online via Google Meet
About the event
Learn how European rare-disease networks and patient representation can help strengthen recognition, collaboration, and the patient voice for Arachnoiditis worldwide. You’ll also learn how you can become involved as an Outreach Coordinator and help expand awareness and advocacy in your own country or region.
Presenter:
Marion Roosen - de Haard - Founder, Arachnoiditis Nederland
OC for the Netherlands - Lead OC for Europe
ePag for ERN-RITA
When: Saturday, September 19, 2026
Time: 10:00 AM ET | 9:00 AM CT | 8:00 AM MT | 7:00 AM PT | 4:00 PM CEST
How to join:
Join the meeting: https://meet.google.com/wtq-mazj-ozb
For the best experience, we recommend joining from a computer. If you’re using a mobile phone and have trouble joining the meeting, please see our Google Meet Joining Instructions & FAQs.
RSVP (recommended):
Please RSVP so you receive joining instructions, event reminders, and any updates. If you don’t see them right away, check your confirmation email and event reminders.