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Social Media Toolkit: Amplify Our Voice

Welcome to the ACMCRN Social Media Toolkit, a powerful resource designed to unite voices and amplify our message across the globe. This toolkit is your gateway to making a significant impact on raising awareness for Arachnoiditis and other rare diseases. Whether you’re deeply involved in our community or looking to lend your voice to our cause, here you’ll find everything you need to share, educate, and inspire action through your social media platforms.

Why Use the Toolkit?

Social media is a potent tool for change, capable of reaching thousands, if not millions, with a single post. By utilizing our pre-crafted messages and visuals, you can help us:

  • Spread Awareness: Increase visibility for Arachnoiditis and rare diseases, educating your network on their impact.

  • Drive Advocacy: Encourage others to join our cause, advocating for research, support, and solutions.

  • Build Community: Connect with others who share your passion for making a difference in the rare disease community.


What’s Inside?

Our toolkit is meticulously organized to make your advocacy as effective and impactful as possible:

  • Ready-to-Post Messages: Crafted with care, each message is designed to engage and inform, perfect for sharing across platforms like Facebook, Twitter, and Instagram.

  • Engaging Graphics: Eye-catching images and infographics that visually convey the significance of our cause, ready to download and post.

  • Hashtags for Impact: Strategic hashtags that increase the reach of your posts, connecting them with a global conversation.

  • Tips for Sharing: Guidance on how to effectively share and discuss Arachnoiditis and rare diseases on social media, maximizing your impact.


How to Get Started

  1. Explore: Browse through the toolkit to find messages and graphics that resonate with you.

  2. Copy & Paste: For text posts, simply copy the message and paste it into your social media. For images, download and upload them directly to your platform.

  3. Share & Tag: Don’t forget to use the recommended hashtags and tag our official account to join the wider conversation.

Social Media Graphics

Join the Awareness Movement: Share Your Support

Eager to create an impact? Our Social Media Toolkit is filled with stunning social media graphics designed to express your support and enhance awareness of Arachnoiditis and rare diseases.

How to Download Your Social Media Graphic:

  1. Select the photo gallery you would like to download images from.

  2. Select the graphic you wish to use by clicking on it. You'll be directed to a full-size version of the image.

  3. Find the Download Arrow on the page, typically located at the bottom or top corner.

  4. Click the Download Arrow to save the image directly to your device.

  5. Make It Visible: Upload the downloaded graphic to your social media accounts, transforming your profile into a beacon of support and awareness.

Facebook Profile Photos

Facebook Cover Photos

Facebook Post Graphics

Video Shorts Collection

Dive into our carefully curated selection of video shorts, offering compelling insights and essential information about Arachnoiditis. Each piece is designed to inform, inspire, and ignite conversation. Whether you're seeking to understand more about this condition, looking for support, or wanting to share knowledge within your community, our videos provide a valuable resource.

For a deeper dive and to access downloadable versions, simply click on the link provided below each video. This will take you directly to our YouTube channel, where you can find additional content, join our community, and help spread awareness about Arachnoiditis. 


In this section, we are excited to share with you some example posts that you can easily copy and paste into your preferred social media platforms. These posts can be accompanied by graphics and videos from this page. They have been carefully crafted to help you raise awareness and show your support for individuals affected by arachnoiditis.


  1. Select the example post that resonates with you and your message.

  2. Copy the entire text of the post by highlighting it and using the copy function (right-click and select "Copy" or press Ctrl+C).

  3. Go to your desired social media platform and create a new post.

  4. Paste the copied text into the post by right-clicking and selecting "Paste" or pressing Ctrl+V.

  5. Customize the post if desired, and add the relevant graphics or videos from our toolkit. You can download the graphics using the instructions provided, and share the videos using the YouTube links provided.

  6. Finally, click the "Post" or "Share" button to publish your message and join the movement of raising awareness for arachnoiditis.


Note: Make sure to include the appropriate hashtags, such as #ArachnoiditisAwareness, to maximize the reach of your posts and connect with others in the community.

We hope these example posts inspire you and make it easier for you to spread awareness about arachnoiditis. Together, let's make a difference and show our support for those affected by this condition.




Post #1:  Join the Arachnoiditis Awareness Movement!

Arachnoiditis is a rare condition causing chronic pain and neurological symptoms. Let's spread awareness and support those affected. Share this graphic and help us make a difference! #ArachnoiditisAwareness #StandStrong #ACMCRN

Post #2: Understanding Arachnoiditis

Watch this informative video to learn more about arachnoiditis and its impact on individuals' lives. Help us raise awareness by sharing this video. Together, we can make a difference! #ArachnoiditisAwareness #EducateEmpower #ACMCRN

Post #3: Did you know? 

Arachnoiditis affects the protective layers around the spinal cord, leading to chronic pain and nerve damage. Let's spread the word and educate others. Share this graphic to raise awareness about arachnoiditis. #ArachnoiditisAwareness #KnowledgeIsPower #ACMCRN

Post #4: Supporting the Arachnoiditis Community

Together, we can make a difference for individuals living with arachnoiditis. Share this graphic and let's show our support, raise awareness, and offer hope. #ArachnoiditisAwareness #SupportCommunity #ACMCRN

Feel free to use these example posts as a starting point and adapt them to your specific needs. Don't forget to include the relevant graphics or videos from this toolkit and encourage others to share them to maximize the impact of your awareness campaign.

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