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Resource Library

​Find trusted resources in the ACMCRN Resource Library, including educational materials, research, treatment and management information, patient and caregiver resources, practical tools, and connections to rare disease organizations and advocacy resources.

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Search by keyword or browse by category. Use either one or combine both to narrow your results. Results update automatically as you type or select a category, no button or Enter key needed.

Search by keyword or browse by category. Use either one or combine both to narrow your results. Results update automatically as you type or select a category. no button or Enter key needed.

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Organization

Arachnoiditis Europe

Dedicated European outreach resource for arachnoiditis, supporting awareness, recognition, education, advocacy, and connections across Europe on behalf of the ACMCRN network.

Bulletin

Bulletin 66 — Steps to Take if You Are Deteriorating

One-page educational bulletin on steps to take if you are deteriorating.

Bulletin

Bulletin 69 — Acetazolamide for AA-Related Headaches, Blurred Vision, and Dizziness

One-page educational bulletin on acetazolamide for aa-related headaches, blurred vision, and dizziness.

Bulletin

Bulletin 64 — Are You Ready for Your Next Flare?

One-page educational bulletin on are you ready for your next flare?.

Bulletin

Bulletin 27 — Recommended Starting Treatment Protocol

One-page educational bulletin on recommended starting treatment protocol.

Conference Poster

ACMCRN Poster Abstract 2024 — 2nd European Congress on Neurology & Neuropsychiatry

ACMCRN research poster presentation page for the 2nd European Congress on Neurology & Neuropsychiatry, held in London, UK, February 19–20, 2024. The poster is displayed on the page as an image.

Educational Resource

Empowering Independence Through Self-Directed Care

A practical overview of self-directed attendant services that help adults with physical disabilities recruit, hire, train, schedule, and manage their own support workers, including an Ontario Direct Funding perspective and guidance for finding local programs.

Bulletin

Bulletin 67 — Just What is Lumbar-Sacral Adhesive Arachnoiditis?

One-page educational bulletin on just what is lumbar-sacral adhesive arachnoiditis?.

Bulletin

Bulletin 70 — Time Frame and Process to Developing AA

One-page educational bulletin on time frame and process to developing aa.

Bulletin

Bulletin 21 — Best Drugs for AA and IPS: Pregnenolone

One-page educational bulletin on best drugs for aa and ips: pregnenolone.

Bulletin

Bulletin 68 — Protocol First, Then Try New Treatments

One-page educational bulletin on protocol first, then try new treatments.

Report

Antecedents and Complications of 64 Cases of Adhesive Arachnoiditis

In-depth Tennant Foundation report on antecedents and complications of 64 cases of adhesive arachnoiditis.

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