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Explore an extensive range of informative articles and valuable resources covering a variety of topics on Arachnoiditis and related conditions. Delve into the latest insights, research updates, and clinical updates about Adhesive Arachnoiditis. Gain access to the first patient and public-involved systematic review of arachnoiditis, shedding light on chronic meningitis. Discover the critical role of the leptomeninges in normal CNS development and function.

Get a comprehensive understanding of diagnosing Arachnoiditis through "Arachnoiditis Hope," where you can find valuable information on diagnosis. For those seeking guidance on obtaining Social Security Disability Benefits for Spinal Arachnoiditis, find expert advice at "DisabilitySecrets."

Extend your exploration to CSF-related topics, including Spinal CSF Leaks. Dive into resources from organizations like "Spinal CSF Leak Association" and "Spinal CSF Leak Canada" to learn more about spinal fluid leak conditions.

Further your understanding of Ehler's Danlos Syndrome (EDS) and Connective Tissue Disorders through "EDS Awareness," a comprehensive website offering valuable information. Explore resources provided by the "Tarlov Cyst Foundation," "Tarlov Cyst Society Europe," and the "Vigdis Thompson Foundation," focusing on Tarlov and Arachnoiditis Cysts.

Access additional resources for healthcare professionals, researchers, teachers, students, patients, families, and friends through organizations like NIH, NORD, Rare Connect, and more. Global resources and international-serving groups such as EURORDIS and Beacon Findacure offer a broader perspective on rare disease networks.

Whether you're a medical professional, researcher, patient, or supporter, these resources aim to empower and inform individuals within the Arachnoiditis community and beyond. Explore these insights to stay informed and engaged in the world of Arachnoiditis research, advocacy, and education.


Adhesive Arachnoiditis: No Longer a Rare Disease

Adhesive Arachnoiditis: A Clinical Update (

First patient and public involved systematic review of arachnoiditis (chronic meningitis)

The leptomeninges as a critical organ for normal CNS developme\nt and function

Diagnosing Arachnoiditis- Arachnoiditis Hope


Arachnoiditis Hope- Bulletins


How to Get Social Security Disability Benefits for Spinal Arachnoiditis-SSDI

How to Get Disability Benefits for Spinal Arachnoiditis | DisabilitySecrets


Spinal CSF Leak-Spinal fluid leak


CSF Leak Association


Spinal CSF Leak Canada

Ehler's Danlos Syndrome (EDS)-Connective Tissue Disorders

EDS Awareness- great website for EDS information


Tarlov Cyst Foundation


Tarlov Cyst Society Europe


Vigdis Thompson Foundation

Dr. J. Peter Warnke (Tarlov Cyst & Arachnoiditis)


How to get Social Security Disability Benefits for Spinal Arachnoiditis

Disease Info Search


National Center for Advancing Translational Sciences (NCATS)


NIH (National Institutes for Health)


Rare Disease Networks

GARD-Genetic and Rare Disease Network


For Patients Families and Friends:


Healthcare Professionals:




Teachers and Students:


Global Genes




Rare Connect for Arachnoiditis


Rare Disorders New Zealand


Medics 4 Rare Diseases


Chan Zuckerberg Rare as One

Global Resources & International Serving Groups


Beacon Findacure 

Primary Beneficiaries are Patient Groups


Canadian Organization for Rare Disorders


EURORDIS Rare Disease Europe


Orphanet EU Rare Disease Resource

The portal for rare diseases and orphan drugs




Rare Connect Arachnoiditis Group

Connecting Rare Disease Patients Globally


Rare Disorders New Zealand


Vidgis Foundation by Dr. J Peter Warnke

CSF Leak & Blockage
Connective Tissue Disorders
Tarlov Cysts
Misc Articles
Rare Disease Orgs
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