Awareness in Action
Each July, patients, caregivers, and advocates around the world come together to raise awareness for Arachnoiditis—a painful, often overlooked condition caused by inflammation and scarring of the spinal nerves.
Whether you're living with Arachnoiditis, supporting a loved one, or just learning about it for the first time, your voice matters.
Explore educational events, our global patient registry, peer programs, and ways to get involved.
Events & Peer Support
We offer peer support meetings and educational events year-round—but during Arachnoiditis Awareness Month, we’re featuring a few special guests. This year, we’re honored to welcome Edward, who will lead a session on physiotherapy, and Rida, who will guide a values-based reflection activity designed to support emotional well-being.
These events, along with our regular programming, are free and open to all. Whether you're newly diagnosed or have been living with Arachnoiditis for years, there's something for everyone.
Support the Future of Research
The International Arachnoiditis Patient Registry is almost ready to reopen!
This groundbreaking registry will collect patient-reported outcomes and real-world data to help improve diagnosis, treatment, and long-term care.
As we finalize survey updates and ensure compliance, your support makes it possible to maintain and grow this powerful platform.
We're looking for 25 compassionate supporters to give $25/month — a small gift that fully funds the registry platform and keeps this initiative alive.
Arachnoiditis Social Media Toolkit
Help spread the word during Arachnoiditis Awareness Month with our free graphics and outreach tools. The toolkit includes:
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Facebook profile pictures (the small image shown when you post)
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Facebook post graphics for sharing awareness messages
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Facebook cover images (the large banner at the top of your profile)
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Short videos you can share to help educate and inspire others
Everything is ready to download and use—just pick what fits your style and start raising awareness.
Featured Face of Arachnoiditis: Steve Lovelace
Crushed by a falling tree and paralyzed at 20, Steve defied every expectation—learning to walk again, becoming a pioneer in paratriathlon, and finishing his first triathlon against all odds. Now living with Arachnoiditis and Cauda Equina Syndrome, he continues to inspire as a podcast host and advocate, proving that courage and grit can outlast pain.
Read Our July Newsletter
Stay informed and inspired with our latest updates. The July Arachnoiditis Awareness Newsletter brings together everything happening this month—from special events and community spotlights to new educational resources and ways to get involved.
Read real stories from patients, discover upcoming sessions with experts like Rida and Edward, and learn how you can support research through our 25 for $25 campaign.
Whether you're new to Arachnoiditis or a longtime advocate, this newsletter is your gateway to connection, action, and hope.
