Introduction to ACMCRN ACMCRN is a well-established nonprofit organization. Founded in 2018, it has an international reach and board...

While there are currently no FDA treatments for Arachnoiditis, patients do have some treatment options to consider. Supplements and hormones

By By Lori Verton  Arachnoiditis and Chronic Meningitis Collaborative Research Network  (ACMCRN).  _________________________________ Who...

Educational Article for Peer Support : Navigating Acute CrisisI . Introduction : Strategy in the Worst State I am sharing a raw,...

Spinal cerebrospinal fluid (CSF) leaks, the cause of Spontaneous Intracranial Hypotension (SIH), share many symptoms with Arachnoiditis and are often misunderstood or misdiagnosed. The hallmark sign is a positional headache that worsens when standing and eases when lying down, but symptoms like fatigue, brain fog, and nausea are also common. Awareness is essential for faster diagnosis and effective treatment options such as bedrest, epidural blood patches, or surgery.

The Tennant Foundation provides simple daily exercises to help individuals with adhesive arachnoiditis (AA) maintain mobility, prevent foot and leg paralysis, and support healthy spinal fluid flow. These include standing stretches, ankle and leg movements, walking with arm swings, rocking exercises, and deep breathing. Regular walking is emphasized as the most important activity to improve spinal fluid circulation and overall neurologic function.

This report presents findings from a study of 45 participants with MRI-documented Adhesive Arachnoiditis (AA). The primary goal was to identify causes of clinical deterioration and find measures to stop or slow it. The study concludes that AA is not a hopeless or untreatable disease and that its deterioration can be contained, controlled, and even reversed.

New neuroscience research shows that breathwork can synchronize brain activity in ways similar to psychedelic states — offering measurable relief and calm. For those living with Arachnoiditis and chronic pain, this ancient practice is gaining scientific validation as a valuable tool to improve quality of life.

Ancient Buddhist monks practiced intentional breathwork for centuries to calm the mind and ease suffering. Now, new fMRI research proves these practices synchronize brain regions and may offer real pain relief — bridging ancient wisdom and modern neuroscience.

Lori Verton shares 8 years of progress in Arachnoiditis research—and what’s next for the Registry, community, and you.

Ehlers-Danlos Syndrome (EDS) is a group of disorders that affect connective tissues. It is primarily caused by defects in collagen production. People with EDS often experience stretchy skin, joint hypermobility, and a tendency to bruise easily. Other symptoms can include chronic pain and joint dislocations. Many Arachnoiditis patients also have some type of connective tissue disorder

Ketorolac and Medrol are two important medications used to manage pain and inflammation. Ketorolac, a strong NS In this bulletin, we will explore the use of Ketorolac and Medrol. Both medications are significant in the medical field for their therapeutic effects. Ketorolac is a powerful non-steroidal anti-inflammatory drug (NSAID). It is primarily used to relieve moderate to severe pain. Medrol, on the other hand, is a corticosteroid that reduces inflammation and suppresses

Adhesive arachnoiditis is a rare neurological disorder involving inflammation of the arachnoid layer, one of the three protective membranes surrounding the brain and spinal cord. This inflammation can cause scar tissue (adhesions) to form, binding spinal nerves together and often leading to severe, chronic pain and neurological dysfunction.

Feeling burnt out ? Fight or flight, experienced from the unrelieved pain from AA and its associated disorders, causes us to sometimes...

When I asked him what that was. "It's just some inflammation in the nerves in your back. It occurs often in women who need to lose weight."

The holidays can be tough for those with Arachnoiditis due to chronic pain and fatigue, but with planning, enjoyment is possible. Here are some tips: Pace Yourself! Focus on joyful activities, delegate tasks, and enjoy cozy nights with loved ones. Choose familiar, gentle foods to avoid inflammation and bring your own snacks to gatherings. Opt for quieter settings and use noise-canceling headphones to reduce overwhelming stimuli. Prioritize Comfort Wear comfortable clothing

Deep Breathing for stress and pain reduction

Little known facts about spontaneous Intracranial Hypotension (SIH) caused by spinal fluid leaks

The importance of magnesium, MTHFR gene mutation, difference types of magnesium and what they do

How intractable pain and inflammation can cause the adrenal glands to become depleted