Introduction to ACMCRN ACMCRN is a well-established nonprofit organization. Founded in 2018, it has an international reach and board...

While there are currently no FDA treatments for Arachnoiditis, patients do have some treatment options to consider. Supplements and hormones

https://www.painnewsnetwork.org/stories/2025/12/4/study-shows-anger-makes-chronic-pain-worse The author of this opinion piece has made a good caveat to be considered by physicians who might add "anger" to their assessments. Much like they did with childhood trauma, these assessments are often not to help more quickly identify those who may struggle with pain management and provide targeted assistance, but as a way of evidence for a diagnosis of a mental diagnosis, like funct

Intrathecal pain pumps can provide meaningful relief for some chronic pain patients, but they also carry significant risks. This guide offers clear, experience-based insight into the benefits, complications, and critical safety warnings—especially for those with Adhesive Arachnoiditis.

Explore how sea vegetables—rich in minerals, antioxidants, and natural anti-inflammatory compounds—can support energy, nerve health, and overall balance. This episode introduces simple ways to use Kombu and Wakame to boost digestion, replenish minerals, and gently support the body for those living with chronic pain and neurological instability.

Warm twig tea (Kukicha) offers a simple yet powerful daily ritual for calming the nervous system and supporting mind-body balance. Rooted in modern neuroscience and macrobiotic wisdom, this gentle, low-caffeine tea helps activate the vagus nerve, reduce stress, and ease the intensity of Arachnoiditis and chronic pain. Sip slowly and let warmth become part of your healing routine.

Today we introduce the Ginger Compress, a warming traditional therapy for stiffness and stagnation. Ginger’s active compounds boost circulation, reduce inflammation, and provide gentle, penetrating heat. Used only on non-spinal muscle areas, it can help ease deep tension and bring comforting relief. Try it and note any shifts in mobility or comfort.

Spinal cord stimulators are often promoted as an option for chronic pain, but their effectiveness in adhesive arachnoiditis is far more complex. This series explores what current evidence really shows, how paddle and percutaneous systems differ, the risks patients should understand, and how new technology may — or may not — change outcomes for those living with severe nerve root inflammation and scarring.

In this week’s post, we explore Miso Soup—the cornerstone of macrobiotic healing and a powerful, accessible tool for well-being. Rich in probiotics and nutrients, miso supports the gut-brain axis, reduces inflammation, and promotes internal balance. Learn the science behind its calming effects and try a simple daily recipe to gently support your body and mood.

Living with Adhesive Arachnoiditis can feel overwhelming. While research continues, healing isn’t only about future treatments—there are practical ways to support your well-being right now. Our new series, Unlocking New Possibilities, explores simple mind-body tools, gentle movement, breathwork, and holistic practices to help you feel more balanced, calm, and empowered each day.

By By Lori Verton  Arachnoiditis and Chronic Meningitis Collaborative Research Network  (ACMCRN).  _________________________________ Who...

Educational Article for Peer Support : Navigating Acute CrisisI . Introduction : Strategy in the Worst State I am sharing a raw,...

Spinal cerebrospinal fluid (CSF) leaks, the cause of Spontaneous Intracranial Hypotension (SIH), share many symptoms with Arachnoiditis and are often misunderstood or misdiagnosed. The hallmark sign is a positional headache that worsens when standing and eases when lying down, but symptoms like fatigue, brain fog, and nausea are also common. Awareness is essential for faster diagnosis and effective treatment options such as bedrest, epidural blood patches, or surgery.

The Tennant Foundation provides simple daily exercises to help individuals with adhesive arachnoiditis (AA) maintain mobility, prevent foot and leg paralysis, and support healthy spinal fluid flow. These include standing stretches, ankle and leg movements, walking with arm swings, rocking exercises, and deep breathing. Regular walking is emphasized as the most important activity to improve spinal fluid circulation and overall neurologic function.

This report presents findings from a study of 45 participants with MRI-documented Adhesive Arachnoiditis (AA). The primary goal was to identify causes of clinical deterioration and find measures to stop or slow it. The study concludes that AA is not a hopeless or untreatable disease and that its deterioration can be contained, controlled, and even reversed.

New neuroscience research shows that breathwork can synchronize brain activity in ways similar to psychedelic states — offering measurable relief and calm. For those living with Arachnoiditis and chronic pain, this ancient practice is gaining scientific validation as a valuable tool to improve quality of life.

Ancient Buddhist monks practiced intentional breathwork for centuries to calm the mind and ease suffering. Now, new fMRI research proves these practices synchronize brain regions and may offer real pain relief — bridging ancient wisdom and modern neuroscience.

Lori Verton shares 8 years of progress in Arachnoiditis research—and what’s next for the Registry, community, and you.

Ehlers-Danlos Syndrome (EDS) is a group of disorders that affect connective tissues. It is primarily caused by defects in collagen production. People with EDS often experience stretchy skin, joint hypermobility, and a tendency to bruise easily. Other symptoms can include chronic pain and joint dislocations. Many Arachnoiditis patients also have some type of connective tissue disorder

Ketorolac and Medrol are two important medications used to manage pain and inflammation. Ketorolac, a strong NS In this bulletin, we will explore the use of Ketorolac and Medrol. Both medications are significant in the medical field for their therapeutic effects. Ketorolac is a powerful non-steroidal anti-inflammatory drug (NSAID). It is primarily used to relieve moderate to severe pain. Medrol, on the other hand, is a corticosteroid that reduces inflammation and suppresses