Welcome to Our Rare Disease Day 2026 Awareness Hub
On February 28th, the global community unites for Rare Disease Day to honor the strength of the millions living with rare conditions. This year, we are moving beyond simple awareness toward a future of action and access.
Watch: "More Than You Can Imagine"
We are proud to share the official 2026 global video from RareDiseaseDay.org. It highlights the daily reality of navigating unsupportive systems and calls for a world where empathy replaces judgment and healthcare is truly inclusive. As the video emphasizes, we are looking for action and access, not apologies.
Join Our Fundraising Drive
To help us continue our advocacy and support for the Arachnoiditis community, we are holding a special fundraising drive. Your contributions directly fuel our ability to provide resources, foster community, and push for the "action and access" our community deserves.
Spread the Word
Help us raise awareness by sharing the mission. Download our official social media graphics below to use on Facebook and other platforms to show your support.
More Content Coming Soon
We are just getting started. Stay tuned as we update this page with new Faces of Arachnoiditis stories and more ways to get involved throughout the month.
Unseen Struggles: The Reality of Rare Diseases
About This Video
This year’s official global video highlights the reality of living with a rare condition—from navigating societal scrutiny to confronting unsupportive systems. It captures a powerful call for "action and access, not apologies". We invite you to share this vision for a brighter, inclusive future where empathy replaces judgment, healthcare is accessible to all, and no one is marginalized. Together, we strive for more breakthroughs, more community, and more hope than you can imagine.
Rare Disease Day Social Media Graphics
Show your support for Rare Disease Day with our custom social media graphics! Download our specially designed Facebook cover and profile photos to spread awareness and show solidarity with the rare disease community. It's a simple yet powerful way to make a difference. Click to view and download your favorites, and don't forget to share them with your network!
*Be sure to click on the arrow(s) to scroll through the images on a laptop/computer or click "LOAD MORE" on a mobile device. Once you click on the graphic of your choice, you'll be able to download the image.
Check out our video presentation "Harnessing AI and Machine-Learning Platforms in Rare Disease: Living with Arachnoiditis" narrated by ACMCRN's Dr. Ishna Singh, MD, offers a deep dive into Arachnoiditis. It includes historical context, patient data analysis, and the role of AI in research, aiming towards treatments and cures. This presentation is a must-see for insights into combating this rare condition through innovative technology.
Action and Access: Fuel the Breakthroughs
Your donation on Rare Disease Day directly supports advocacy and resources for the Arachnoiditis community. Together, we can replace apologies with action.
Every contribution helps us bridge the gap between clinical research and patient reality. By donating today, you are ensuring that "Arachwarriors" have access to the evidence-based guides, community support, and advocacy they need to navigate life with a rare disease.
Frequency
One time
Monthly
Amount
Support Patient Education Materials
$25
Fund Advocacy & Awareness Projects
$50
Strengthen the Collaborative Network
$100
Other
0/100
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