Educational Article for Peer Support : Navigating Acute CrisisI . Introduction : Strategy in the Worst State I am sharing a raw,...

Spinal cerebrospinal fluid (CSF) leaks, the cause of Spontaneous Intracranial Hypotension (SIH), share many symptoms with Arachnoiditis and are often misunderstood or misdiagnosed. The hallmark sign is a positional headache that worsens when standing and eases when lying down, but symptoms like fatigue, brain fog, and nausea are also common. Awareness is essential for faster diagnosis and effective treatment options such as bedrest, epidural blood patches, or surgery.

The Tennant Foundation provides simple daily exercises to help individuals with adhesive arachnoiditis (AA) maintain mobility, prevent foot and leg paralysis, and support healthy spinal fluid flow. These include standing stretches, ankle and leg movements, walking with arm swings, rocking exercises, and deep breathing. Regular walking is emphasized as the most important activity to improve spinal fluid circulation and overall neurologic function.

This report presents findings from a study of 45 participants with MRI-documented Adhesive Arachnoiditis (AA). The primary goal was to identify causes of clinical deterioration and find measures to stop or slow it. The study concludes that AA is not a hopeless or untreatable disease and that its deterioration can be contained, controlled, and even reversed.