ACMCRN and the Tennant Foundation: Understanding the Difference

Introduction to ACMCRN

ACMCRN is a well-established nonprofit organization. Founded in 2018, it has an international reach and board members. The organization originally emerged from the "Arachnoiditis" Facebook group. Our primary vision is to create global awareness and education on #Arachnoiditis. We aim to provide peer support and conduct professional research activities related to this condition.

Our mission centers on fostering collaboration worldwide. We seek to advance research, understanding, and treatment for #Arachnoiditis, benefiting patients and medical professionals around the globe. By working together, we can achieve more than any one organization could alone.

Collaboration and Support

We welcome activities and events from any organization that supports Arachnoiditis patients, irrespective of their location. For most of our eight years of service, the Tennant Foundation has been a vital financial supporter. We continue to collaborate with Dr. Tennant, sharing his research and educational endeavors.

Differences in Research Focus

What distinguishes ACMCRN from the Tennant Foundation?

1. Community-Driven Research: ACMCRN prioritizes studies that the community identifies as essential. We assess the lived experiences of patients through data collected within our community. Our research aims to establish foundational information that highlights the unique experiences of Arachnoiditis patients.

   
   

2. Methodological Rigor: Our research is conducted using industry-standard methods. Achieving these standards allows us to present our findings at professional conferences and in peer-reviewed medical journals. Our first study was presented at seven conferences in 2023 and 2024.

   
   

3. AI-Driven Insights: Using artificial intelligence, we have been able to gather insights from our data collection. This innovative approach led to identifying potential diagnostic indicators that we are excited to explore further. Stay tuned for announcements regarding our next survey, which will open soon!

   
   

4. Learning from Experience: Much of the knowledge we share with our community is based on Dr. Tennant's experiences with patients. Our team has accumulated this wisdom since 2008 and uses it to enhance our research.

   
   

Research Methodology

How does ACMCRN approach research?

ACMCRN strives to replicate Dr. Tennant's unique studies using methodologies that meet strict peer-reviewed journal requirements. These involve obtaining IRB (ethics) approvals, ensuring statistical power through appropriate participant numbers, and utilizing certified laboratories.

By collaborating with the PEER alliance of Rare Disease research groups, we adopt the latest techniques in rare disease research. Our goal is to follow the standards set by the Hague Convention Research from 1992.

Our team includes seasoned researchers who specialize in compliance with these stringent requirements. We have epidemiologists to guide our testing and reporting, data analysts to interpret results, and researchers skilled in crafting submissions for respected medical journals.

Dr. Tennant plays a crucial role in hypothesis testing, generating insights that can greatly inform our studies. As ACMCRN moves forward, we can build upon his findings and engage in broader, more in-depth studies suitable for professional conferences and reputable journals.

Funding and Future Plans

What are ACMCRN's financial considerations?

Completing comprehensive studies is time-consuming and costly. For instance, tests that require blood or tissue samples demand significant resources and funding. This process is part of our long-term strategy to enhance the understanding and treatment of Arachnoiditis globally.

Funding plays a crucial role in our ability to formalize findings from less structured studies. With adequate resources, we hope to adapt and expand upon Dr. Tennant's initial work, meeting research standards that could transform treatment approaches for Arachnoiditis.

Call for Support

Can you help us make a difference?

We are actively seeking volunteers for fundraising initiatives, such as organizing walkathons and silent auctions. Those skilled in cold calling for donations or with experience in corporate/non-profit fundraising are especially welcome.

If volunteering isn't an option, consider making a donation to our programs at www.acmcrn.org/donate.

Together, we can dream big and achieve our goals. Remember, teamwork makes dreams a reality!

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