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WE'VE GOT YOUR BACK!

ACMCRN has your back-- and burning feet-- two main areas where Arachnoiditis usually hits. Our Collaborative Research Network was created in 2017 in order to bring light to this rare disease and a voice to those who suffer with it.

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Join Us in Raising Awareness for Arachnoiditis

Join us in spreading awareness and support for Arachnoiditis this July. On our Arachnoiditis Awareness Month page, you’ll find:

  • Social Media Graphics: Download and share to spread the word.

  • Exclusive Merchandise: Show your support with our t-shirts and hoodies.

  • Educational Videos: Share these videos to educate others about Arachnoiditis.

  • Ways to Help: Volunteer, donate, and more.​

 

Visit the Arachnoiditis Awareness Month Page

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ABOUT ARACHNOIDITIS

Back Massage

Arachnoiditis is initiated when there's an insult to the Arachnoid mater from either trauma, infection, or chemical irritation. When this happens, the body's normal response is to trigger special glial cells located in the nerves. These then migrate to the injured area and release cytokines as part of normal healing. 

However, in those who are predisposed to Arachnoiditis, it also causes neuro-inflammation, that if left untreated, becomes swollen and inflamed, leading to the nerves becoming clumped and tethered together, which can progress to them adhering to the dura layer of the meninges, which is commonly called Adhesive Arachnoiditis (or scarring) and is the most severe form of Arachnoiditis.

 

For people living with a serious disease that's labeled as rare, this can be a real living nightmare. For the thousands, perhaps millions of people who have Arachnoiditis, we need to educate the public and the medical community on this serious public health threat.

About AA

WHO IS ACMCRN?

About Us
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Arachnoiditis & Chronic Meningitis Collaborative Research Network (ACMCRN) serves patients, physicians, and researchers in the global Arachnoiditis community. By harnessing the power of social media, which allows patients and their families - 'Arachwarriors ' to collaborate across the globe, and employing the latest in rare disease research techniques, we hope to find the answers to this rarely studied condition. Through the power of community, (patients, families, physicians, and researchers), we aim to uncover answers that will lead to prevention, care and clinical treatment of this devastating disease.

STARTING POINT

Emergency Protocol
Emergency Starting Protocol

If you're new to Arachnoiditis and looking for guidance on where to begin, our Starting Point webpage is a great resource to get you started. We provide a wealth of information on medical treatment options, including both prescription and non-prescription medications, alternative treatments, and medical devices. In addition, we offer peer support meetings and an emergency starting protocol to help you manage the condition. We also feature Dr. Tennant's three-component protocol, a comprehensive treatment approach designed to address the physical, psychological, and emotional aspects of living with Arachnoiditis. Visit our website to access all of these valuable resources and more.

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