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Arachnoiditis Community Support Group

Private·269 members

About

👋 Welcome to the Arachnoiditis Community Support Group


Welcome to the Arachnoiditis Community — a safe and supportive space for patients, caregivers, and advocates.


This group works through a continuous feed, where you can:

  • 📝 Post your questions, stories, and resources

  • 💬 Comment and connect with others in real time

  • 🌟 Share updates, encouragement, and lived experiences

  • 📚 Find helpful links to ACMCRN programs, educational articles, and upcoming events


Looking for more? Visit our ACMCRN Blog for in-depth articles, research updates, and additional resources.


Our goal is to make sure no one faces Arachnoiditis alone. Whether you’re newly diagnosed, looking for treatment information, or simply want to connect with people who understand, this is your place to belong.


✨ Please be respectful, kind, and supportive. Together, we can empower each other and strengthen our community.

Group Rules


Our Rules

📋 Arachnoiditis Community Group Rules 1. **Be Respectful** Treat all members with kindness, patience, and empathy. 2. **Share, But With Care** You may share your prescribed medications and personal treatment experiences. ⚠️ **Disclaimer:** This group does not provide medical advice. What works for one person may not work for another. Always consult your healthcare provider before making medical decisions. 3. **Protect Privacy** Do not share personal details (yours or others’) outside this group. 4. **Stay on Topic** Keep discussions focused on Arachnoiditis, related conditions, disability resources, and community support. 5. **No Promotions or Spam** Advertising, fundraising, or unrelated links are not allowed unless approved by ACMCRN. 6. **No Political Speech** Political discussions are not allowed **unless directly related to healthcare, disability rights, or patient advocacy.** When sharing these, please be respectful and constructive. 7. **Support, Don’t Judge** Everyone’s journey with Arachnoiditis is different. Respect differences in treatment choices, beliefs, and experiences. 8. **Report Concerns** If you see something inappropriate, please report it to the group admin.

Info

  • Private

    Only approved members can view this group.

  • Visible

    Shown to site visitors.

  • September 6, 2025

    Created

  • Created by

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