top of page

Choose from one of the categories below, or scroll to see all posts.
Search


Arachnoiditis Awareness Month Newsletter #1
July is Arachnoiditis Awareness Month. This ACMCRN newsletter shares important community updates, awareness efforts, educational resources, and ways to help increase understanding of Arachnoiditis.
EveBlackburn
Jul 142 min read


Patient Story: "Move It or Lose It" My Journey with Arachnoiditis
My story with Adhesive Arachnoiditis didn't start with a diagnosis. It started with pain… and not being believed. After two failed spinal surgeries, 17 years without answers, two CSF leaks, and moments where I nearly didn't survive — I finally found my diagnosis buried in a Medicare file. This is what I learned, what helped, and why there is still room for hope.
EveBlackburn
May 46 min read


Final Harmony: Weaving Mind, Body, and Energy for Lasting Well-being
In this series finale, we integrate the science of neuroplasticity with the power of Visualization to "close the gate" on chronic pain signals. Discover a comprehensive daily harmony plan that combines Kukicha tea, Do-In, and macrobiotic nutrition into a sustainable routine for managing Adhesive Arachnoiditis and reclaiming your well-being.

Lori Verton
Jan 183 min read


Pain Pumps: Do's and Don'ts
Intrathecal pain pumps can provide meaningful relief for some chronic pain patients, but they also carry significant risks. This guide offers clear, experience-based insight into the benefits, complications, and critical safety warnings—especially for those with Adhesive Arachnoiditis.
EveBlackburn
Dec 8, 20257 min read


🔥 Unlocking New Possibilities: The Ginger Compress for Stagnation
Today we introduce the Ginger Compress, a warming traditional therapy for stiffness and stagnation. Ginger’s active compounds boost circulation, reduce inflammation, and provide gentle, penetrating heat. Used only on non-spinal muscle areas, it can help ease deep tension and bring comforting relief. Try it and note any shifts in mobility or comfort.

Lori Verton
Nov 24, 20254 min read


🥣 The Miso Foundation: Calming Inflammation from the Inside Out
In this week’s post, we explore Miso Soup—the cornerstone of macrobiotic healing and a powerful, accessible tool for well-being. Rich in probiotics and nutrients, miso supports the gut-brain axis, reduces inflammation, and promotes internal balance. Learn the science behind its calming effects and try a simple daily recipe to gently support your body and mood.

Lori Verton
Nov 22, 20253 min read


Beyond the Diagnosis: Reclaiming Your Well-being with Mind-Body Wisdom
Living with Adhesive Arachnoiditis can feel overwhelming. While research continues, healing isn’t only about future treatments—there are practical ways to support your well-being right now. Our new series, Unlocking New Possibilities, explores simple mind-body tools, gentle movement, breathwork, and holistic practices to help you feel more balanced, calm, and empowered each day.

Lori Verton
Nov 21, 20254 min read
bottom of page