Arachnoiditis Awareness Month Newsletter #1
- EveBlackburn
- Jul 14
- 2 min read
Updated: Jul 14
JULY IS ARACHNOIDITIS AWARENESS MONTH
July is Arachnoiditis Awareness Month! Dear ACMCRN members, throughout Arachnoiditis Awareness Month, ACMCRN will be sharing opportunities to learn, connect, advocate, and take action. In this newsletter, you will find: The Arachnoiditis Awareness Month page and social media toolkit, Our featured Faces of Arachnoiditis story with Sara Lewis, RN, upcoming peer-support meetings and community events, and ways to support the Arachnoiditis Awareness Month fundraising drive. Together, these efforts help raise visibility, strengthen connection, and support the future of Arachnoiditis education, advocacy, peer support, and research.
SOCIAL MEDIA TOOLKIT
Explore Facebook profile graphics, shareable social media graphics, and informational videos and reels to help raise awareness throughout July. SHARE • EDUCATE • ADVOCATE • SUPPORT
This Arachnoiditis Awareness Month, we are honored to feature Sara Lewis, RN, in our Faces of Arachnoiditis series.
As both a retired registered nurse and patient advocate, Sara offers a powerful perspective on the challenges of recognition, diagnosis, and being heard while living with Adhesive Arachnoiditis. Her advocacy is especially focused on raising awareness of the potential risks of epidural and spinal anesthesia during childbirth and supporting mothers who believe these procedures may have contributed to their condition.
Events & Peer Support
NEW: Bi-Weekly Open Discussion Peer Support Meeting Facilitated by Sara Beth Lewis, Arachnoiditis Unfiltered Every other Thursday at 10:00 a.m. Eastern | Online via Google Meet
Living with Arachnoiditis can feel incredibly isolating. This bi-weekly Open Discussion Peer Support Meeting is a welcoming online space for patients, caregivers, and anyone affected by Arachnoiditis to connect with others who truly understand.
Register here to receive the standing Google Meet link and phone dial-in information by email, plus event reminders before each session:
https://www.acmcrn.org/event-details/aup-community-meet-up-2026-07-23-10-00
Also explore ACMCRN’s ongoing peer-support opportunities, including Men’s weekly Peer Support Meetings hosted by Lew Sypher, Open Discussion group hosted by NIcole Abbott & Kimberly Brewer, and Hack Your Brain, Hack Your Pain with David McHugh.
Support Arachnoiditis Awareness Month
Arachnoiditis Awareness Month is more than a campaign. It is an opportunity to raise visibility, support patients and caregivers, and continue building resources for a condition that is too often overlooked.
Your donation helps ACMCRN continue our work in patient education, community support, awareness efforts, advocacy, and the development of research-centered resources for the Arachnoiditis and Chronic Meningitis community.
Every contribution helps us reach more patients, support more families, and keep moving this work forward.
Comments