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We’re making steady progress toward reopening the Arachnoiditis International Patient Registry on our new platform, Digital Cabinet.

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A great deal of work has been completed behind the scenes, including building the registry infrastructure, preparing the initial survey instruments, and collaborating with international researchers, clinicians, and patient advocates. These efforts are helping ensure the registry is designed to collect meaningful, high-quality data that can support future arachnoiditis research.

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The registry is currently in the final stages of the ethics review (IRB) process. Once approval is received, we will complete the remaining launch preparations and announce when enrollment officially opens.

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The Arachnoiditis International Patient Registry represents an important step forward for the global arachnoiditis community. By collecting real-world patient data, the registry will help researchers better understand the disease, identify patterns and trends, inform future studies, and support the continued development of improved treatment and care.

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We appreciate your patience and continued support as we work toward reopening this important global research initiative. We look forward to sharing additional updates as we move closer to launch.

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Want to be notified when the registry opens?

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