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Welcome to our comprehensive file section, a treasure trove of invaluable resources designed to empower and educate our community. Dive into the depths of knowledge with our Arachnoiditis Literature Review , where you'll find insights that unravel the complexities of this condition. Explore the Brain & Spinal Cord Immune System section, delving into the intricate mechanisms that safeguard our grey matter. Gain clarity on Cerebral Spinal Fluid Leaks & Blockage with resources and videos that illuminate this intricate realm. Our Disabled Resources segment is a beacon of support, offering guidance and insights to navigate challenges. Discover the world of Implanted Devices , unraveling the do's, don'ts, and secrets they hold. Immerse yourself in Misc Files & Articles , an array of perspectives and studies that enrich your understanding. Lastly, embark on a journey of Practical Pain Management , where clinical updates and emotional insights harmonize. Your quest for knowledge and empowerment begins here, within our meticulously curated file section. Arachnoiditis Articles and Literature Reviews ​ The leptomeninges as a critical organ for normal CNS development and function First patient and public involved systematic literature review of arachnoiditis (chronic meningitis) Spinal Adhesive Arachnoiditis: A Literature Review - PMC (nih.gov) Corticosteroid Therapy in Acute and Subacute Arachnoiditis – A Case Series Perspective: Lumbar adhesive arachnoiditis (AA)/Chronic AA (CAA) are clinical diagnoses that do notrequire radiographic confirmation Adhesive arachnoiditis following lumbar epidural steroid injections: a report of two cases and review of the literature Burton Report A Novel Technique Using Magnetic Resonance Imaging in the Supine and Prone Positions for Diagnosing Lumbar Adhesive Editorial for “MRI Findings of Arachnoiditis, Revisited. Is Classification Needed?” Arachnoiditis: APreliminary Study Lumbar arachnoiditis_ Does imaging associate with clinical features-ScienceDirect PROTOCOLES D'URGENCE ET DE DÉMARRAGE POUR L'ARACHNOIDITE ADHÉSIVE LOMBO-SACREE (AA) A Novel Technique Using Magnetic Resonance Imaging in the Supine and Prone Positions for Diagnosing Lumbar Adhesive Arachnoiditis: A Preliminary Study Medical treatment for epidural fibrosis post-surgery with association of pentoxifylline-tocopherol-clodronate (PENTOCLO) Obstetric Epidurals and Chronic Adhesive Arachnoiditis ​ Brain and Spinal Cord Great Article on how the brain and spinal cord has its own immune system. Guardians of the brain: how a special immune system protects our grey matter (nature.com) The Effect of L-Arginine on Dural Healing ​ Cerebral Spinal Fluid Leaks and Blockage Resources and videos Spontaneous Low Pressure, Low CSF Volume Headache : Spontaneous CSF Leaks Spontaneous Intracranial Hypotension : 10 Myths and Misconceptions Bulletin #19 : Spinal Fluid Seepage Bulletin #76 : Why Adhesive Arachnoiditis Causes Spinal Fluid Leaks Bulletin #77 : Complications and Treatment of AA Spinal Fluid Leaks Bulletin #47 : Spinal Fluid Flow Exercises for AA Treatment Bulletin #74 : Rocking Chair for CSF flow Bulletin #69 : Acetazolamide for the treatment of high spinal pressure for blurry eyes, headaches, and dizziness Myelography Techniques for the Detection of Spinal CSF Leaks in Spontaneous Intracranial Hypotention ​ CSF Leaks videos from Spinal CSF Leak Canada ​ VIDEO #1- Diagnosis and Treatment of Rebound Intracranial Hypertension (RIH) - A Complication of Epidural Blood/Fibrin Patching and Surgery (Treatment for a Spinal Cerebrospinal Fluid (CSF) Leak/SIH . ​ VIDEO #2-Post Dural Puncture Headache (PDPH) – Diagnostic and Treatment Strategies for Chronic Iatrogenic Spinal CSF Leaks. ​ VIDEO #3- Dr. Farnaz Amoozegar, presented this talk on ”PDPH - Clinical Perspective from the Neurologist's Viewpoint” at our webinar on Chronic Iatrogenic Spinal CSF Leaks, on April 9, 2022. ​ Disability and Other Resources Also see our members only community forum under "Disabled Resources " for more resources Miracle Flights Available grants for people with disabilities Navigating the Job Market with a Rare Disease: A Toolkit for Success How to get palliative care in the US Free Flights for Rare Disease Patients Free Flights for Rare Disease Patients Patient Advocate Foundation (PAF) American Pain and Disability Foundation Patient Advocacy Services; Pain Patient Assistance; Pain Patient Education Understanding Career Opportunitiesmand Employment Benefits Can You Get Disability Benefits for Spinal Arachnoiditis? | DisabilitySecrets EDS-Ehlers Danlos Syndrome and Associated Connective Tissue Disorders Cusack Protocol for Connective Tissue Disorders Cusack Protocol Dosages chart Cusack Protocol Dosages - list FAQ - Debbie Johnson FAQ for Newcomers Biomarkers in Connective disease, including Arachnoidiotis The skin in hypermobile Ehlers-Danlos syndrome – The Ehlers-Danlos Support UK ​ Implanted Devices Pain Pump Do’s Don'ts and Things They Won’t Tell You Misc. Files & Articles ​ ​ The Physiologic Effects of Pain on the Endocrine System - PMC (nih.gov) Toward a Systematic Approach to Opioid Rotation ​ Comprehensive Review of Arachnoiditis Don’t Call it a Miracle - The Movement to Cure Spinal Cord Injury ​ Timing of Early Treatment of Neurological Deficits Post Intervention and Operative Spinal Procedures ​ ​ ​ Practical Pain Management Adhesive Arachnoiditis: A Clinical Update (practicalpainmanagement.com) A first-generation diagnostic and treatment guide for managing this inflammatory, painful condition of the lower spinal canal. Accepting a Chronic Pain Diagnosis: A Trip Through the 5 Emotional Stages Spinal Fluid CSF Disabled Resource Collagen Diseases Implanted Devices Misc Articles Dr. Tennant Dr. Tennant Handbooks and Other Papers Adhesive Arachnoiditis Colored Brochure by Dr. Tennant ​ Dr. Tennant's Bulletins ​ Bulletin 10 Naltrexone (LDN) Bulletin 15 3 Component Treatment to Tackle AA – 2021 Bulletin 19 Spinal Fluid Seepage Bulletin 21 Best Drugs for AA and IPS Featured: Pregnenolone Bulletin 27 Recommended Starting Protocol Bulletin 61 (1 of 2) -MRI diagnosis of Lumbar Adhesive Arachnoiditis (AA) for Primary Care Practitioners Bulletin 62 (2 of 2)-MRI diagnosis of Lumbar Adhesive Arachnoiditis (AA) for Primary Care Practitioners Bulletin 63 Symptom Criteria For a Diagnosis of Adhesive Arachnoiditis (AA) Bulletin 64 Are You Ready for Your Next Flare? Bulletin 65 Ancient History Underpins the Three Component Protocol (see bulletin 15) Bulletin 66 Steps to Take if You're Deteriorating Bulletin 67 What is Lumbar/Sacral Adhesive Arachnoiditis Bulletin 68 Protocol First- Then Try New Treatments Bulletin 69 Acetazolamide for Headaches, Blurred Vision, and Dizziness Bulletin 70 Time Frame and Process to Developing AA Bulletin 72 The “Empty Sac” Sign – What does it mean? Bulletin 73 Diet for AA Bulletin 74 Rocking Chair Therapy Bulletin 76 Why AA Causes CSF Leak Bulletin 77 Complications of CSF Leaks ​ Dr. Tennant Chronicles Chronicle 11 Foods that help heal an inflamed body Chronicle 102 INTRACTABLE PAIN SYNDROME (IPS) IS TREATED WITH A 4-COMPONENT PROTOCOL Chronicle 75 ELECTRO-MEDICAL (EM) THERAPY SERIES Part one of four ELECTRIC CURRENT (EC) THERAPY Chronicle 79 CRITICAL NECESSITY TO MAINTAIN HORMONE BLOOD LEVELS Chronicle 80 THE OLD-FASHIONED ESTROGEN SHOT Chronicles 81 IS KRATOM RIGHT FOR YOU? Chronicle 82 Symptom criteria for diagnosis of AA Chronicle 83 WHY AND WHAT YOU MUST KNOW ABOUT GABA Chronicle 86 Failure to differentiate between addiction, chronic pain, and IPS Chronicle 87 – How neurotransmitter-receptor systems relieve pain – Part 1 Chronicle 88 – Neurotransmitters and receptors – Part 2 Chronicle 89 – How to raise critical neurotransmitters – Part 3 Chronicle 90 – Immediate pain relief with GABA – Part 4 Chronicle 91 – Necessity to regenerate endorphin receptors – Part 5 Chronicle 95 – Are you in palliative or curative care? – Part 1 Chronicle 96 – Fallacies and misconceptions about palliative care – Part 2 Chronicle 97 – Palliative Care- Presenting your case to family and physician – Part 3 Chronicle 98 – IPS depletes cortisol-adrenal storage (reserve) Chronicle 99 – IPS patients have two kinds of pain: neuroinflammatory and neuropathic Chronicle 100 – Why high blood sugar (glucose) worsens pain Chronicle 101 – Metabolic complication of IPS: diabetes pre-diabetes, excess cholesterol Chronicle 102 – IPS is treated with a 4-component protocol ​ Dr. Tennant Bibliographies BIBLIOGRAPHY OF SCIENTIFIC ARTICLES SUPPORTING THE USE OF KETOROLAC FOR PATIENTS WITH AA BIBLIOGRAPHY ON PREVALENCE OF ADHESIVE ARACHNOIDITIS (AA) BIBLIOGRAPHY OF SCIENTIFIC ARTICLES SUPPORTING THE USE OF CORTICOSTEROIDS FOR PATIENTS WITH ADHESIVE ARACHNOIDITIS BIBLIOGRAPHY OF ARTICLES ON BRAIN SCANS IN INTRACTABLE PAIN SYNDROME BIBLIOGRAPHY FOR ADHESIVE ARACHNOIDITIS ​

< Back Sheldon Jordan Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Stuart Rosenblum Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Whitney James Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

FOR HEALTHCARE PROFESSIONALS Please also visit our file section where you will find more useful information and articles about Arachnoiditis ​ Arachnoiditis Literature Review Spinal Adhesive Arachnoiditis: A Literature Review Spinal Adhesive Arachnoiditis: A Literature Review - PMC (nih.gov) ​ First patient and public involved systematic literature review of arachnoiditis (chronic meningitis) The leptomeninges as a critical organ for normal CNS development and function ​ Arachnoiditis Continuing Education Activity https://www.ncbi.nlm.nih.gov/books/NBK555973/ ​ Genetic Testing for Opioid Pain Management: A Primer https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5447546/ ​ Adhesive Arachnoiditis: A Clinical Update (practicalpainmanagement.com) A first-generation diagnostic and treatment guide for managing this inflammatory, painful condition of the lower spinal canal. Dr. Tennant's newly released book, "Clinical Diagnosis and Treatment of Adhesive Arachnoiditis: Handbook for the Medical Practitioner Paperback – April 26, 2022 ​ Are you a Med Student interested in learning more about Arachnoiditis symptoms, diagnosis and treatment while interacting with a real Arachnoiditis patient, please consider joining this annual Med Student/Patient Global Gene's Rare Compassion Pairing program. https://globalgenes.org/compassion/ Perhaps you are a med student or family physician who has been out of school awhile. This is a helpful resource. SNF SPINAL NERVE FUNCTION FORM | Parker University Bookstore Medics 4 Rare Diseases. Online Rare Disease 101 classes aimed at medical professionals with little prior knowledge in rare disease. https://learn.m4rd.org/ ​ Amazing new resource! Can't wait to add it to our Educational Materials package for Med Students, Residents and Doctors. https://www.amazon.com/gp/product/1955934150/ref=crt_ewc_title_srh_2?ie=UTF8&psc=1&smid=ATVPDKIKX0D A Novel Technique Using Magnetic Resonance Imaging in the Supine and Prone Positions for Diagnosing Lumbar Adhesive Arachnoiditis: A Preliminary Study ​ Are you interested in learning more about Arachnoiditis Patterns on MRI? https://radedasia.com/arachnoiditis-patterns-on-mri/ Want more comprehensive teaching on how to detect Arachnoiditis on MRI? Handbook to Recognize Adhesive Arachnoiditis by Magnetic Resonance Imaging (MRI) Interested in the latest review of Classifications of Arachnoiditis? MRI Findings of Arachnoiditis, Revisited. Is Classification Possible? Looking for a CME/CE Credit in Arachnoiditis? https://presentwounds.com/lecturehall/description/6833/Adhesive-Arachnoiditis-Identification-Treatment-and-Management-of-Inflammatory-Pain/ 8. CPME accredited version of Adhesive Arachnoiditis. https://podiatry.com/lecturehall/description/6835/Adhesive-Arachnoiditis-Identification-Treatment-and-Management-of-Inflammatory-Pain/ Dr. Tennant of The Tennant Foundation bibliographies, bulletins, and misc. files ​ BIBLIOGRAPHY OF SCIENTIFIC ARTICLES SUPPORTING THE USE OF KETOROLAC FOR PATIENTS WITH AA ​ BIBLIOGRAPHY ON PREVALENCE OF ADHESIVE ARACHNOIDITIS (AA) ​ BIBLIOGRAPHY OF SCIENTIFIC ARTICLES SUPPORTING THE USE OF CORTICOSTEROIDS FOR PATIENTS WITH ADHESIVE ARACHNOIDITIS ​ BIBLIOGRAPHY OF ARTICLES ON BRAIN SCANS IN INTRACTABLE PAIN SYNDROME ​ BIBLIOGRAPHY FOR ADHESIVE ARACHNOIDITIS ​ MRI diagnosis of Lumbar Adhesive Arachnoiditis (AA) for Primary Care Practitioners. 1 of 2 Bulletin #61 ​ MRI diagnosis of Lumbar Adhesive Arachnoiditis (AA) for Primary Care Practitioners 2 of 2 Bulletin #62 Symptom Criteria For a Diagnosis of Adhesive Arachnoiditis (AA) Bulletin #63​ Bulletin #64

< Back Jacob P. Schwarz Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Carlyle Hamsher Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

Welcome to ACMCRN's volunteer opportunities. Several opportunities are available right now. You will work remotely with talented peers on a rewarding, nonprofit program as part of the ACMCRN's nonprofit team. As an ACMCRN Volunteer, you will be a part of the organization’s efforts to connect and educate our communities about Arachnoiditis. We thank you for your interest. Currently openings include: Executive Administrative Assistant. Attorney experienced in Nonprofits Volunteer Coordinator Grant writer Social Media administrative support Copywriters Website Developer Social Media If you feel like you qualify for any of these positions, please take a moment and fill out our volunteer application. A volunteer coordinator will get back to you shortly. If you don't see an opening that you qualify for, please feel free to enter your information in the form below. Be sure to enter your skills and areas of interest, and we will contact you when an opportunity arises.

< Back Richard Friedman Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Clifford Lin Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

Newly Diagnosed or Presumptive Cases Early identification and treatment of A rac hnoiditis is important to prevent the serious complications of Adhesive Arachnoiditis. If you’re newly diagnosed, suspect that you have Arachnoiditis, or are one of the many thousands who have been misdiagnosed for years, you will find the tools to get started on your treatment plan and to connect with others like you here. ​ EMERGENCY STARTING PROTOCOL Emergency Starting Protocol for suspected or likely Adhesive Arachnoiditis after spinal tap, spinal surgery, or epidural injection. ​ Arachnoiditis causes attachment of cauda equina nerve roots to the arachnoid-dural (meninges) covering of the spinal canal. Untreated, nerve roots become trapped, impaired, and destroyed within the inflammatory mass of adhesions that may result in paraparesis, autoimmune manifestations, spinal fluid flow obstruction, and bladder, bowel, and sex organ dysfunction. ​ This protocol is recommended anytime within 4 months of the inciting procedure. ​ PROTOCOLES D'URGENCE ET DE DÉMARRAGE POUR L'ARACHNOIDITE ADHÉSIVE LOMBO-SACREE (AA) Three-Component Protocol Here you will find two bulletins from The Tennant Foundation that are key to controlling the downward spiraling effect of untreated or under-treated Arachnoiditis. These protocols work by addressing the three important factors; neuro-inflammation; tissue regeneration; and pain control. Both bulletins are similar, but contain slightly different options. It’s important to note that successful treatments must cross the important blood-brain barrier, or BBB short. The BBB works by protecting the spinal cord from potentially toxic substances within the blood while still delivering necessary molecules to maintain spinal cord activities, including lowering neuro-inflammation and regenerating tissue. ​ Bulletin #15- Three Component Treatment Protocol ​ ​ ​ More from Tennant Adhesive Arachnoiditis : No Longer a Rare Disease This article discusses adhesive arachnoiditis, a condition that affects the spinal cord and nerves, causing chronic pain and other symptoms. The article highlights that the condition is no longer considered rare, but is often misdiagnosed or underdiagnosed. It provides a detailed overview of the causes, symptoms, and treatment options for adhesive arachnoiditis. If you or someone you know is experiencing chronic pain or other symptoms related to the spinal cord or nerves, it is recommended that you read this article and bring it to your physician for discussion. This information may help with early detection and proper diagnosis, which can lead to better treatment outcomes. READ NOW Do You Suspect Arachnoiditis , but have not been officially diagnosed? ​ If you suspect you may be living with arachnoiditis, we recommend exploring the D iagnosis Assi stance article by Dr. Tennant at Arachnoiditis Hope. This article provides expert guidance and criteria for diagnosing lumbar-sacral adhesive arachnoiditis, even if you haven't received an official diagnosis. ​ Arachnoiditis can be challenging to diagnose, but early recognition is crucial. If you're experiencing symptoms like constant back pain, leg pains, urinary difficulties, burning sensations in your feet, or other related symptoms, this article is here to help. Click to Read

Tennant has been treating patients with Intractable Pain Syndrome since he opened his pain clinic in 1975, where he treated patients with painful diseases until he retired in 2018. Since then, he has led the Tennant Foundation and its Arachnoiditis Research and Education Project. ​ Dr. Tennant has been kind enough to allow us to publish his works on our site. Feel free to print out any of the information you find on this website and share widely. We highly recommend that you read Dr. Tennant's article on Arachnoiditis . This is a comprehensive first-generation diagnostic and treatment guide for managing this inflammatory, painful condition of the lower spinal canal. PODCASTS BY DR. TENNANT Check out Dr. Tennant's mED-IQ.A YouTube channel for anyone looking for reliable, informative, and engaging content on a wide range of healthcare topics. With an extensive library of videos, mED-IQ.A provides valuable insights on the latest advancements, best practices, and innovative approaches in healthcare, including topics such as Arachnoiditis and pain management. Their videos are designed for healthcare professionals and patients alike. Visit their YouTube channel at https://www.youtube.com/@mED-IQ.A/videos to start watching today!" Two important videos from Dr. Tennant and Dr. Bobby Koneru on Arachnoiditis. The first video is from The Monk and the Hedonist and is a follow-up question and answer period with Dr. Tennant. Questions were submitted by members of the ACMCRN Facebook group and are based on the first video. It's best to watch them both or you can read the transcripts. Video #1 Managing Neuro-inflammatory Spine Disease and Adhesive Arachnoiditis TRANSCRIPT ENGLISH TRANSCRIPT FRENCH Video #2 Follow-up Q & A by Dr. Forest Tennant ​ TRANSCRIPT video 2 BUY RELEASED January 2022 Handbook to Recognize AA by MRI *link for the Amazon in the US BUY Handbook to Live Well with Adhesive Arachnoiditis Paperback – June 23, 2021 *link for the Amazon in the US BUY Book by Dr. Tennant for medical practitioners, "Clinical Diagnosis and Treatment of Adhesive Arachnoiditis" ​ BUY Arachnoiditis: An Old Disease Re-Emerges in Modern Times *link for the Amazon in the US BOOKS BY DR. TENNANT DR. TENNANT BULLETINS These are just a few of his Bulletins on Arachnoiditis and Chronicles from his Intractable Pain Syndrome (IPS) project. You can find the complete set on the Arachnoiditis Hope website. ​ Bulletin 1 – Polypeptid es (peptides): Game Changer Bulletin 2 – Two Polypeptides ([peptides) for AA and IP Bulletin 4 – Starting M edical Protocol for MRI-Documented AA Bulletin 8-KPV and BPC157 peptides available in non-injectable form About Low Dose Naltrexone Bulletin 10 Naltrexone (LDN) Three Component Protocol Bulletin 15 ​ Spinal Fluid Seepage Bulletin 19 ​ Best Drugs for AA and IPS Featuring Progesterone Bulletin 21 ​ Stages and Categorization of AA Bulletin 23 ​ Recommended Starting Treatment Protocol Bulletin 27 ​ Emergency Treatment After Spinal Tap or Epidural Bulletin 56 ​ Recommended Blood Test for AA This includes hormone levels, inflammation, glucose and cholesterol Bulletin 57 ​ MRI diagnosis of Lumbar Adhesive Arachnoiditis (AA) for Primary Care Practitioners. 1 of 2 Bulletin #61 MRI diagnosis of Lumbar Adhesive Arachnoiditis (AA) for Primary Care Practitioners 2 of 2 Bulletin #62 Symptom Criteria For a Diagnosis of Adhesive Arachnoiditis (AA) Bulletin #63 ​ Are You Ready for Your Next Flare? Bulletin #64 Ancient History Underpins the Three Component Protocol (see Bulletin #15 on his website) Bulletin #65 Arachnoiditis Hope)Steps to Take if You're Deteriorating Bulletin #66 Acetazolamide For AA-Related Headaches, Blurred Vision and Dizziness Bulletin #69 ​ Time Frame And Process From Spinal Canal Puncture To Adhesive Arachnoiditis (AA) Bulletin #70 ​ The "Empty Sac" Sign - What Does It Mean? Bulletin #72 ​ Dietary Measures For Adhesive Arachnoiditis (AA) Bulletin #73 ​ Rocking Chair Therapy Bulletin #74 ​ Why Adhesive Arachnoiditis (AA) Causes Spinal Fluid Leaks Bulletin #76 ​ Complications And Treatment Of AA Spinal Fluid Leaks Bulletin #77 ​ Treating Neuropathic Pain in AA Bulletin 78 ​ Bulletin 82 - Autoimmune-Collagen Conditions Preceding AA ​ Bulletin 83 - Administration of Four Consistent Agents for AA ​ Bulletin 84 - Cytokines blood tests for inflammation ​ INTRACTABLE PAIN SYNDROME CHRONICLES Chronicle 11 – Foods that help heal an inflamed body ​ Chronicle 75 - Electro-medical (EM) therapy series Part 1 of 4 ​ Chronicle 79 - Critical necessity to maintain hormone blood levels ​ Chronicle 80 - The old-fashioned estrogen shot Chronicles 81 - Is KRATOM right for you? Chronicle 82 - Symptom criteria for diagnosis of AA Chronicle 83 - Why and what you must know about GABA ​ Chronicle 86 - Failure to differentiate between addiction, chronic pain, and IPS Chronicle 87 – How neurotransmitter-receptor systems relieve pain – Part 1 ​ Chronicle 88 – Neurotransmitters and receptors – Part 2 ​ Chronicle 89 – How to raise critical neurotransmitters – Part 3 ​ Chronicle 90 – Immediate pain relief with GABA – Part 4 ​ Chronicle 91 – Necessity to regenerate endorphin receptors – Part 5 ​ Chronicle 95 – Are you in palliative or curative care? – Part 1 ​ Chronicle 96 – Fallacies and misconceptions about palliative care – Part 2 ​ Chronicle 97 – Palliative Care- Presenting your case to family and physician – Part 3 ​ Chronicle 98 – IPS depletes cortisol-adrenal storage (reserve) ​ Chronicle 99 – IPS patients have two kinds of pain: neuroinflammatory and neuropathic ​ Chronicle 100 – Why high blood sugar (glucose) worsens pain ​ Chronicle 101 – Metabolic complication of IPS: diabetes pre-diabetes, excess cholesterol ​ Chronicle 102 – IPS is treated with a 4-component protocol ​ ​ MISC. FILES ​ Adhesive Arachnoiditis: A Clinical Update (practicalpainmanagement.com) A first-generation diagnostic and treatment guide for managing this inflammatory, painful condition of the lower spinal canal. ​ Sixteen Key Findings About Arachnoiditis https://www.painnewsnetwork.org/stories/2019/6/7/16-key-findings-about-arachnoiditis ​ Sixteen Key Findings About Arachnoiditis in French 16 découvertes clés sur l’arachnoïdite ​ ​ ​ To see the complete collection, visit The Tennant Foundation ​ Home: https://arachnoiditishope.com/ Bulletins: https://arachnoiditishope.com/protocols/ Books: https://arachnoiditishope.com/bulletins/ Medical Protocols: https://arachnoiditishope.com/protocols-2/ Intractable Pain Syndrome: https://arachnoiditishope.com/treatments/ ​ ​ © 2022 Tennant Foundation

< Back Adam Hy Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back David M Yousem Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back McNaught Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Eric Ehlenberger Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Sabrina Ruth Panich Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Steven Cyr Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back David Edelberg Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Arthur J. Ulm, III Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Jeremy Scarlett Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

TIFFANY GAUDETTE This is my story I remember the day I first day I heard the words “Adhesive Arachnoiditis”. It was during an appointment with my spinal surgeon 2 years into rehabilitation after a disc ruptured in my spinal canal, requiring 3 surgeries. I wanted to cry… this was not supposed to happen! I was supposed to be walking after all this work. ​ My story was not like those I read of a miraculous full recovery. Despite hard work, I was plagued by being bedridden with severe pain, with my legs literally giving out. Walking became impossible and unbearable when I could. I was terrified another disc ruptured or more surgery would be needed but was told I had AA and surgery was not even an option. I stayed in physical therapy, tried AFO’s (Ankle Foot Orthopedic) and KAFO’s (Knee Ankle Foot Orthopedic), robotic assistive braces and every non-invasive therapy you can think of. ​ I got sick of being bed bound and alone. I found ParaSport’s and an Arachnoiditis group, where many people were part of my journey to be functional again. I took complete control of my medical treatment and pain management plan (overseen by my GP). I began to experiment with medicinal cannabis for pain control (with therapeutic exemption for international sport), and utilized a manual wheelchair full time. This was hard…I still somewhat had the ability to weight bare for a short amount of time standing, my rigid legs and partially functioning right leg made this possible. ​ At times the pain made me want to end my life. Insufferable pain, I felt/was alone suffering in silence except to my physio team who no longer would support my goal of rehabilitation to walk full time. The new plan was learning to adapt and live from my manual wheelchair. ​ The manual chair caused the least amount of pain and I could finally begin to be active. I thank these therapists! They saved my life without knowing. They helped me transition as I would lose more mobility and feeling in my legs to the point that transfers, supported standing and driving with my right leg was the extent of how my lower body would work. I spent a lot of time in pain finding adaptations: literally 5 years and a year of self pity. I can now say I am in a good place. My pain management helps me function. I have learned to manage my neurological bowel and bladder on my own. I have reduced my infection rates as well. Sports helped me become conscious of healthy habits which I continue to practice to be my best. Although I may never find a doctor to help me understand the pathology of this rare disease, I refuse to allow it to take me. I will continue to throw away (literally and figuratively) the anger, frustration, and pain; and push forward for those who can not. I am comfortable living life from a chair, being disabled and will continue to coach those in my community and help them to be comfortable with their disabilities while playing parasport. ​ I've stopped caring about other people's opinions of my body autonomy. Many times my disability has been misunderstood and so have I but I will remain resilient. I will be an ambassador and educate people on a rare disease that stops or takes many people's lives! This is for you my fellow warriors who we have lost and continue to be in horrific pain. You got this and so do I, we are resilient. ​ We are #Arachwarriors! ​ ​ Have a story you'd like to share with us? Send us an email with your story of 500 words or less and we will be in contact with you. ​ EMAIL

< Back Alex Nelson Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Zeeshan Tayeb Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Scott DePue Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Octavia Kincaid Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back John Claude Krusz Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back William G Gillespie Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Jerry Niernberger Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Liz Rushman Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Janice Pauley Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Stephen P Banco Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Mark T. Malone Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Logan A Pritchard Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

This page is for alternative treatments, please visit our Treatment Plan page for more detailed options for treating both neuro-inflammation and pain. ​ Interventions including surgery and epidural corticosteroid injections (ESI) should be avoided with Arachnoiditis. While we continue our path to ensuring that Arachnoiditis is studied and recognized by the medical community, we must do what we can to educate ourselves and our healthcare providers on the most current methods to treating Arachnoiditis. It is our hope that you will find the tools for success here. Be sure to bookmark this page as it will be updated as new information becomes available. ​ ​ BLOOD HORMONE LEVELS Before starting any hormone supplements, it is recommended to consult with your physician and have your blood hormone levels tested. This is crucial as chronic pain can deplete the endocrine system, and the tests will check how effectively it is working. To treat the neuroinflammation from arachnoiditis, it is necessary to take these tests. ​ The recommended hormone test includes cortisol, DHEA, pregnenolone, and testosterone. In addition, the Inflammatory Markers blood test should include ESR, CRP, and cytokines. Other blood tests that should be taken include blood sugar and cholesterol levels. ​ It's important to note that a hormone deficiency may cause increased impairments and pain, while an elevated inflammatory marker calls for more aggressive control of spinal canal inflammation. For more information, download and print Bulletin 57 - Blood Test for AA . As always, consult your physician before taking any new vitamins or supplements. SUPPLEMENTS AND HERBAL REMEDIES If you're uncertain about where to begin, Dr. Forest Tennant's Bulletin (#15) on Three-Component Treatment to Tackle AA is an excellent starting point for managing Arachnoiditis at any stage. This treatment combines prescription medications and supplements to address inflammation, tissue regeneration, and pain control. Below is a breakdown of some of the supplements that are commonly used. ​ Palmitoylethanolamide (PEA). Palmitoylethanolamide (PEA) belong to endocannabinoid family, a group of fatty acid amides. PEA has been proven to have analgesic and anti-inflammatory activity and has been used in several controlled studies focused on the management of chronic pain among adult patients with different underlying clinical conditions. Many Arachnoiditis patients have found this supplement beneficial to control neuro-inflammation. It's recommended to take along with luteolin and can be found on Amazon. There are a couple of products available that contain both PEA and Luteolin on Amazon or you can purchase individually. ​ Here's an article on PEA Therapeutic utility of palmitoylethanolamide in the treatment of neuropathic pain associated with various pathological conditions: a case series - PMC (nih.gov) ​ CBD- Since there's so much information on the internet, I won't go into a lot of detail, but many people find relief from the inflammation and pain associated with Arachnoiditis using CBD. It comes in a variety of forms, both topically and edible. Here's an interesting article I found when doing research Treating Arachnoiditis with Medical Marijuana - Cannabis — Sabina Holistic Health ​ ​ L-Arginine L-arginine is known to help heal the dura which is often times damaged from Adhesive Arachnoiditis. L-Arginine for Spinal Fluid Leaks and Seepage ​ Kratom Some patients who have had their pain medications discontinued or who are looking for an alternative have turned to Kratom. Here an article worth checking out, Kratom, Is It For You? DIETARY MEASURES The best diet for Arachnoiditis is a low carb, high protein diet. Stay away from processed sugars, foods that are known to cause inflammation such as cheese, eggs, and dairy, and high carbohydrate foods. ​ 12 Foods That Heal the Inflamed Body ​ ​ ALTERNATIVE THERAPIES Pulsed Electro-Magnetic Field (PEMF) therapy Dr. Tennant from Arachnoiditis Hope did a wonderful 4 part series. Here are the links to the chronicles in pdf file form. Chronicle 75 – Electromedical Therapy Part 1: Electric Current Therapy ​ Chronicle 76 – Electromedical Therapy Part 2: Electromagnetic ​ Chronicle 77 – Electromedical Therapy Part 3: Blockage And Retention ​ Chronicle 78 – Electromedical Therapy Part 4: Guidance ​ IMPLANTED MEDICAL DEVICES Please read bulletin 68 and this article, Pain Pump Do's and Don'ts and Things They Won't Tell You before considering risky invasive treatment options as they should only be considered as a last resort. Some people have great success with implanted devices, such as spinal cord stimulators and pain pumps, but it's highly recommended that you thoroughly research the device before making a decision and only have them implanted by a surgeon familiar with Arachnoiditis. ​ What to do if you're in a flare Adhesive arachnoiditis (AA) is a spinal canal inflammatory disease that can flare or progress at any time. You must build a “better and better” program to prevent flares and further deterioration. If you believe your AA is progressing and you are deteriorating, here are some steps we recommend Bulletin 66- Steps to take if you're deteriorating ​ Are You Ready for Your Next Flare? Bulletin #64 ESI'S and Epidurals Epidural and epidural Corticosteroid Injections (ESI) are a no-no for Arachnoiditis patients. The FDA issued a black box warning, the strongest warning they issue, warning about the side effects, including Arachnoiditis. It's left up to the physician who is giving the injections to explain the warning to you, and they rarely do. Stay informed and stay away from ESI's.

Support Arachnoiditis Research and Patient Registry Thank you for considering a donation to ACMCRN, the Arachnoiditis and Chronic Meningitis Collaborative Research Network! Your support is crucial in advancing research, maintaining the Arachnoiditis International Patient Registry, and supporting various operational aspects of our organization. Your Impact: Your generous contributions have already made a substantial difference, enabling ACMCRN to achieve significant milestones, including: - **Arachnoiditis International Patient Registry:** - Launching the first-ever Arachnoiditis International Patient Registry, a groundbreaking initiative that collects and analyzes data crucial for research and patient support. - **Patient Survey Success:** - Conducting the first-ever patient survey, with over 1250 participants, amplifying the voices and experiences of those affected by Arachnoiditis. - **Poster Abstracts Worldwide:** - Presenting Poster Abstracts at medical conventions throughout the world to share insights, advancements, and raise awareness among healthcare professionals. - **Pioneering Website Design:** - Establishing the first-ever website dedicated to Arachnoiditis, providing a central hub for information, resources, and community engagement. - **Fundraising Store Operations:** - Covering the costs to run our fundraising store, which serves as a valuable resource for supporters to contribute and raise awareness. These accomplishments demonstrate the power of collective support in driving innovation and progress in the field of Ara chnoiditis. Ways to Give: ​ ​ Donate via PayPal: Click the button below to be directed to PayPal's secure website. There, you can make a one-time donation or choose to set up recurring monthly contributions. Your flexibility in giving empowers our ongoing efforts. ​ ​ ​ ​ Stay Connected: ​ Subscribe: Your support is invaluable to us, and we want to keep you in the loop about the incredible impact you're making. By subscribing to our news letter , you'll receive regular updates, inspiring stories, and exclusive insights into the groundbreaking work being done at ACMCRN. ​ Follow Us: ​ ​ ​ ​ Secure & Convenient: ​ Rest assured, your donation is secure and directly contributes to advancing Arachnoiditis and Chronic Meningitis research, maintaining the Arachnoiditis International Patient Registry, supporting the operation of your fundraising store, and other critical aspects of ACMCRN. Your generosity fuels our collaborative efforts. Thank you for being a vital part of ACMCRN's mission to make a positive impact on arachnoiditis research and patient support! DONATE NOW We are still accepting Donations to our Dr Terri Lewis PhD Memorial Fund . As most of you know, Dr Lewis was one of our Founding members and our VP Research before she passed unexpectedly. We have earmarked all funds that come through her Memorial Fund towards a yearly award. We are considering such awards as Young Investigator grants or a yearly Scholarship. This decision will be made and announced by year end. We hope you will consider a small donation.

< Back Lawarence R Miller Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Jacob Teitlbaum Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Christian D Gonzalez Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Open Ambalu Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Swiss Paraplegic Centre Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Wendy Markovich Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Edwards Rodgers Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Waid McMillion Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Candice Boyer Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Daniela Ghetie Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Steven E Berman Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

Johanna Tognozzi This is my story... My story starts in 2015 when I suffered a ruptured brain aneurysm. I was hospitalized for six weeks and had to learn to walk again. I was granted a miracle and lived and was able to return to my job three months later. Three years later I started to lose feeling in my toes and it slowly moved up to my abdomen. When I finally got an MRI it showed I had a cyst on my spinal cord and was taken to surgery where I had an arachnoid cyst removed. The numbness was immediately gone but returned three weeks later. I then had a myelogram that showed a blockage just above where they had just operated. Eight months later I was back in surgery where the neurosurgeon performed a laminectomy and revealed dense calcified masses embedded in the arachnoid. This was at my T-8 through 10. The pathologist diagnosed it as arachnoid ossificans. My neurosurgeon feels I got it from my brain bleed. He says that when it burst, the blood traveled down my spinal cord where it pooled and scared my cord. Why it ossified we don’t know. I later had a C-t scan that revealed more ossified lesions all thru my thoracic region. It’s been two and a half years since that surgery and I now can barely walk. I have numbness and burning pain in my legs and feet, muscles spasms in legs and when I stand it feels as if I will fall off my legs. I have to use a walker to get around now and have had to have hand controls added to my car to be able to continue to drive. I try to stay positive and as active as possible but realize I will be in a wheelchair soon. Johanna Tognozzi Have a story you'd like to share with us? Send us an email with your story of 500 words or less and we will be in contact with you. ​ EMAIL

< Back John R Dickerson Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​

< Back Florida Spine Specialist Doctorate of Physical Therapy (PT) Orthopedic & Spine Institute (248) 553-0010 (586) 771-9966 25100 Kelly Rd, Roseville, MI 48066, USA ​