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Holiday Cheer with Arachnoiditis: Navigating the Glitter and Gravy in a Fragile Body

The holidays are a kaleidoscope of twinkling lights, festive feasts, and joyous gatherings. But for those living with Arachnoiditis, the season's magic can come with a bittersweet sting. Chronic pain, fatigue, and sensory sensitivities can turn even the simplest celebrations into daunting hills to climb.

Yet, despair not, Arachnoiditis warriors! With a little planning and a dash of holiday spirit, you can navigate the season's merry maze with grace and resilience. Here are some tips to help:

Pace Yourself: Your energy is precious, so guard it like a coveted gift. Prioritize outings and activities that bring you joy and avoid the pressure to "do it all." Delegate, say no without guilt, and embrace cozy nights in with loved ones.

Mind the Menu: Holiday feasts are delicious but can be inflammatory for Arachnoiditis patients. Plan your meals with sensitivity in mind, opting for smaller portions, familiar ingredients, and gentle spices. Pack your own snacks and drinks for gatherings to ensure your comfort.

Sensory Savvy: Crowds, flashing lights, and loud music can overwhelm. Choose quieter settings, bring noise-canceling headphones, and limit exposure to potential triggers. Remember, your health is the ultimate party favor.

Prioritize Comfort: Dress for the occasion, but prioritize comfort above all else. Opt for loose-fitting outfits that won't irritate your skin or constrict your movements. Cozy blankets and supportive cushions can be your holiday heroes.

Embrace the Virtual: Technology can be your bridge to holiday cheer. Connect with loved ones through video calls, share virtual gifts, and participate in online festivities. Remember, distance doesn't diminish love, and virtual celebrations can be just as meaningful.

Most importantly, be kind to yourself. This season is about joy and connection, not performance. Celebrate your victories, big and small, and remember that rest is a form of self-care.

Now, as you weave your way through the holiday whirlwind, remember that your journey is not solitary. The Arachnoiditis & Chronic Meningitis Collaborative Research Network (ACMCRN) stands beside you, fighting for better treatments and a brighter future.

This holiday season, consider spreading your wings and supporting ACMCRN's vital work. A donation, no matter how big or small, can fuel research, empower patients, and bring hope to those navigating this challenging condition.

your generosity be the light that guides others through the darkness of Arachnoiditis. Together, we can make this holiday season, and every season to come, a celebration of strength, resilience, and the unwavering spirit of the Arachnoiditis community.

Remember, even with limitations, your holiday joy can shine brightly. So, put on your metaphorical angel wings, spread kindness, and let the spirit of the season guide you through. Happy holidays, Arachnoiditis warriors!

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Yes! Family gatherings are very common all year long in my extended family. Five households in our same country acreage community and my daughter & family just 20 minutes away. I’m blessed, in that I get a reclining seat and can plant my feet on the base to keep a posterior tilt on my pelvis, but it still takes days to recuperate!! They understand I need special seating with my sacral pad under me, but don’t realize the toll it takes. Always a balancing act for sure. I keep a pair of foam ear plugs in my medicine bag for times the screeching kids get to much or the radio too loud at the summer pool birthday parties, etc.



Jeanne Miles
Jeanne Miles
16 gru 2023

I’ve had AA for so many years & didnt understand why I was having issues with music, food, or just being around ppl. Ty so much Eve for sharing these important ideas to keep us comfortable. I hope everyone has a lovely Christmas & New Year’s. 🌷🌷🌷

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